So Close to Death Yet So Far Away

A true story of survival, misdiagnosis, and the fight to live with an invisible illness.

When your body fails, your strength must rise.

BOOK OVERVIEW

The Story

So Close to Death Yet So Far Away is a powerful, real-life account of living with Postural Orthostatic Tachycardia Syndrome (P.O.T.S.), a chronic and often misunderstood autonomic disorder.

Through years of unexplained symptoms, medical uncertainty, and emotional hardship, the author shares what it truly means to fight for answers when your illness is invisible to the world. This book takes readers inside the physical, mental, and emotional challenges of navigating life when your body no longer works the way it should.

More than a story of illness, this is a story of resilience, faith, and refusing to give up.

WHY THIS BOOK MATTERS

Raising Awareness

Millions live with P.O.T.S., yet many struggle for years without a diagnosis. This book helps shine a light on a condition that is often overlooked.

A Voice for the Undiagnosed

If you or someone you love has unexplained symptoms, this story offers understanding, validation, and hope.

Real and Honest

This is not a medical textbook. It is a lived experience — the frustration, fear, and determination that come with chronic illness.

Who This Book Is For:

WHAT YOU’LL LEARN

Early warning signs of P.O.T.S.
The frustration of misdiagnosis.
Navigating the healthcare system.
Mental health and chronic illness.
The importance of support systems
Building resilience through adversity
Finding purpose beyond illness

READER FEEDBACK

“An inspiring journey that gives a voice to those suffering in silence.”

“This book helped me feel understood for the first time.”

“A powerful story of strength and perseverance.”

ABOUT THE AUTHOR

Derek Evans is an author, educator, coach, and entrepreneur who turned his personal battle with P.O.T.S. into a mission to raise awareness about invisible illnesses.

After years of unexplained symptoms and medical uncertainty, Derek chose to share his story to help others feel seen, heard, and understood.

Through his writing and advocacy, he continues to promote compassion, awareness, and resilience for those facing chronic health challenges.

SUPPORT & RESOURCES

Living with P.O.T.S. can be overwhelming, but support is available:

If you or someone you love is affected by chronic illness, this story offers insight, understanding, and hope.